Privacy Policy

At duchennealliance.org, accessible from duchennealliance.org, your privacy is of utmost importance to us. This Privacy Policy outlines the types of personal information we collect, how we use it, and your rights regarding that information. By using our website, you agree to the collection and use of information in accordance with this policy.

Information We Collect

1. Personal Information:

   • We may collect personal information that you provide to us directly, such as your name, email address, phone number, and any other information you choose to submit through our contact forms or newsletter sign-up.

2. Usage Data:

   • We automatically collect information about your device and how you interact with our website. This includes your IP address, browser type, pages visited, time spent on pages, and other usage statistics.

3. Cookies:

   • We use cookies and similar tracking technologies to monitor activity on our website and store certain information. Cookies are files with small amounts of data that may include an anonymous unique identifier.

How We Use Your Information

Duchenne Alliance uses the collected data for various purposes:

• To provide and maintain our website
• To notify you about changes to our website or services
• To allow you to participate in interactive features of our website
• To provide customer support
• To gather analysis or valuable information so that we can improve our website
• To monitor the usage of our website
• To detect, prevent, and address technical issues
• To send you newsletters, marketing, or promotional materials (you can opt out at any time)

Disclosure of Your Information

We do not sell, trade, or otherwise transfer your personal information to outside parties without your consent, except for:

• Service Providers: We may employ third-party companies and individuals to facilitate our website (“Service Providers”), provide the website on our behalf, perform website-related services, or assist us in analyzing how our website is used. These third parties have access to your personal data only to perform these tasks on our behalf and are obligated not to disclose or use it for any other purpose.

• Legal Requirements: We may disclose your personal information if required to do so by law or in response to valid requests by public authorities (e.g., a court or government agency).

Security of Your Data

The security of your data is important to us. While we strive to use commercially acceptable means to protect your personal information, we cannot guarantee its absolute security. Any transmission of personal data is at your own risk.

Your Rights

Depending on your location, you may have the following rights regarding your personal information:

• The right to access, update, or delete the information we have on you.
• The right to rectification.
• The right to object to processing.
• The right to data portability.
• The right to withdraw consent.

To exercise these rights, please contact us using the information provided below.

Links to Other Sites

Our website may contain links to other sites that are not operated by us. If you click on a third-party link, you will be directed to that third party’s site. We strongly advise you to review the Privacy Policy and terms of service of any site you visit. We have no control over and assume no responsibility for the content, privacy policies, or practices of any third-party sites or services.